My name on this blog is Mary - I am changing it to match up with my crafting blog Two Mules for Sister Sara. Yes, Sara is name and if you are following both of my blogs you won't be confused.
From my world to your world...... (hopefully I have not confused both worlds!)
Sara
Tuesday, October 4, 2011
Monday, October 3, 2011
I only thought
It was going to be a good day. Things went fine this morning and during the woodworkign class. But then when I picked him up he was fourious.
He threw my door open and put the dog in and then said he was going back into school.
I parked and went in - it was not a pretty site. He was mad becuase no one said: Yes, stay home from school tomorrow becuase it is your birthday.
Oh he was cussing and kicking the chair in my car. So I decided to drive straight to his therapist appointment. Didn't want to get hom and fight to get him back into the car.
We waited about an hour.
First thing discussed was that I was unders to much stress that I needed my own therapist to help me sort things through and to figure out how I can get help with someone watching his service dog while in woodworking.
To make this long story short - he was not a happy camper when we told him he was going to school.
All the way home: how I hated him, how he was going to run away, I didn't love him I only got him the dog so he would be quiet.
I called husband and told him I was going to need help and that son was going to school tomorrow. Husband called back and said he didn't see anything wrong with son staying home. I explained that we could not give in now.
Later this evening husband said: Son you are going to have to pick another day to stay home.
But then husband told me that son was having some problems with a kid saying some very disgusting things. Husband had better call the principal in the morning!
All is calm not but I am tired!
From my world to your world......
Mary
He threw my door open and put the dog in and then said he was going back into school.
I parked and went in - it was not a pretty site. He was mad becuase no one said: Yes, stay home from school tomorrow becuase it is your birthday.
Oh he was cussing and kicking the chair in my car. So I decided to drive straight to his therapist appointment. Didn't want to get hom and fight to get him back into the car.
We waited about an hour.
First thing discussed was that I was unders to much stress that I needed my own therapist to help me sort things through and to figure out how I can get help with someone watching his service dog while in woodworking.
To make this long story short - he was not a happy camper when we told him he was going to school.
All the way home: how I hated him, how he was going to run away, I didn't love him I only got him the dog so he would be quiet.
I called husband and told him I was going to need help and that son was going to school tomorrow. Husband called back and said he didn't see anything wrong with son staying home. I explained that we could not give in now.
Later this evening husband said: Son you are going to have to pick another day to stay home.
But then husband told me that son was having some problems with a kid saying some very disgusting things. Husband had better call the principal in the morning!
All is calm not but I am tired!
From my world to your world......
Mary
Sunday, October 2, 2011
Latest Doctor Appointment
Of course he didn't want to go to the the psychiatrist appointment - what's new right?
She always calls me in first. I told her she needed to look at his hands and arms. She was going to see a lot of scabs from his anxiety.
And I informed her about the tremors that I was seeing but didn't know if they were happening at school. I can't seem to get the teachers to let me know if they are seeing any tremors. Maybe they aren't so they don't feel like they need to tell me anything.
She was in somewhat of a quandry. Change the anxiety medication or try and change the medication that might be causing tremors. We went with the change of the anxiety medication.
We were supposed to have a meeting this Tuesday for a change of placement. The principal is thinking of giving him Friday afternoons off from school - which I was the one who originally suggested that. But then son's therapist said she just was not the therapist for our son but she was a family therapist and she does not want to let son have Friday afternoons off because she wants me to have some time for me.
I am really torn here. I'm the mom I should be doing what is necessary for my son's success.
On the other hand I have an autism conference I really want to attend - if son is not in school I can't attend the conference.
I have been invited to be a break out speaker at a special education conference. If son is at home then I won't be able to accept that invitation.
So I don't know what we are going to do. The school wanted all dr. appointments after school or before school. To be honest that is killing me. When school is over son is ready to go home so it is not always plesant to take him to an appointment.
The therapist would like for son to have mini breaks during the school week - the therapist appointment and the rehab therapist appoiontment - on different days of the week each week if he is working hard in class.
Now again on the other side the principal wondered if that would really work because son needs consistency.
We had the meeting set for Tuesday at 11:15 but the principal is going to be out of the building so I'm not sure what day the meeting will be.
They should be contacting me tomorrow. I really hate these decisions!
From my world to your world.....
Mary
She always calls me in first. I told her she needed to look at his hands and arms. She was going to see a lot of scabs from his anxiety.
And I informed her about the tremors that I was seeing but didn't know if they were happening at school. I can't seem to get the teachers to let me know if they are seeing any tremors. Maybe they aren't so they don't feel like they need to tell me anything.
She was in somewhat of a quandry. Change the anxiety medication or try and change the medication that might be causing tremors. We went with the change of the anxiety medication.
We were supposed to have a meeting this Tuesday for a change of placement. The principal is thinking of giving him Friday afternoons off from school - which I was the one who originally suggested that. But then son's therapist said she just was not the therapist for our son but she was a family therapist and she does not want to let son have Friday afternoons off because she wants me to have some time for me.
I am really torn here. I'm the mom I should be doing what is necessary for my son's success.
On the other hand I have an autism conference I really want to attend - if son is not in school I can't attend the conference.
I have been invited to be a break out speaker at a special education conference. If son is at home then I won't be able to accept that invitation.
So I don't know what we are going to do. The school wanted all dr. appointments after school or before school. To be honest that is killing me. When school is over son is ready to go home so it is not always plesant to take him to an appointment.
The therapist would like for son to have mini breaks during the school week - the therapist appointment and the rehab therapist appoiontment - on different days of the week each week if he is working hard in class.
Now again on the other side the principal wondered if that would really work because son needs consistency.
We had the meeting set for Tuesday at 11:15 but the principal is going to be out of the building so I'm not sure what day the meeting will be.
They should be contacting me tomorrow. I really hate these decisions!
From my world to your world.....
Mary
Saturday, September 24, 2011
Major meltdown at school yesterday.
He tried so hard to make it all the way through the week.
His therapist and I agreed to give him a reward that he really wants. He goes to school all week and then on Monday dad is picking him up early and will take him to get his driver's test.
It started Thursday night when he did not sleep at all. He was up and down all night. I was emailing his principal at 4 a.m. to give him a heads up that it was going to be a bad day.
He was hurting so I took him some tylenol. That helped and he went back to class.
Then when it was time for me to go back up to the school to sit with his service dog while he went to working, I receive an email from the principal that he needed to talk with me.
I got there and son was already in the back office. So the principal and I went to another office. Son had a major meltdown. He first started out angry (one friend that he has in a class that will actually talk to him was moved, because they talked) then he ended up in a ball on the floor in tears just crying. His service dog walked over to him and sat next to him and looked at him until son looked up and then started petting his dog and calming down.
Son calmed down but remained curled up on the floor with his dog.
We discussed several things.
Go ahead and take him out of the class because the teacher will not win him back over.
Shorten his school week. Have to be careful there - that will change his graduation date - which would mean he would graduate around the age of 20. I would want him to "graduate" with his class just to go through the motions and then continue on with HS. Hopefully that made sense.
He will go to his history class this semester instead of next semester to replace the computer class that we will be take him out of the that class.
So of course we have to have another meeting.
But back to Friday. We sat and talked with son and gave him the option of him leaving school for the day (which the principal and I decided was probably best), go with me to the dr.'s office to pick up some things, or stay at school. He chose to go with me.
While we were at the dr.'s office son wanted to go down to the concourse to find a vending machine. No way. I could just see call the security office sending people out looking for a boy and his dog that were lost in the huge hospital complex.
He wasn't happy with that - but once we got in the car the Spirit whispered - ask him if he wants to go eat at On the Border Mexican restaurant. Boy did his face light up.
We had a relaxed time eating chips and dip and beans and rice.
We are not leaving him alone at all this weekend. We'll have limitations but we want him to have a nice relaxed weekend.
In fact he is still asleep. So far he has been asleep for 11 hours. I'd love for him to be able to sleep a couple of more hours.
From my world to your world.........
Mary
His therapist and I agreed to give him a reward that he really wants. He goes to school all week and then on Monday dad is picking him up early and will take him to get his driver's test.
It started Thursday night when he did not sleep at all. He was up and down all night. I was emailing his principal at 4 a.m. to give him a heads up that it was going to be a bad day.
He was hurting so I took him some tylenol. That helped and he went back to class.
Then when it was time for me to go back up to the school to sit with his service dog while he went to working, I receive an email from the principal that he needed to talk with me.
I got there and son was already in the back office. So the principal and I went to another office. Son had a major meltdown. He first started out angry (one friend that he has in a class that will actually talk to him was moved, because they talked) then he ended up in a ball on the floor in tears just crying. His service dog walked over to him and sat next to him and looked at him until son looked up and then started petting his dog and calming down.
Son calmed down but remained curled up on the floor with his dog.
We discussed several things.
Go ahead and take him out of the class because the teacher will not win him back over.
Shorten his school week. Have to be careful there - that will change his graduation date - which would mean he would graduate around the age of 20. I would want him to "graduate" with his class just to go through the motions and then continue on with HS. Hopefully that made sense.
He will go to his history class this semester instead of next semester to replace the computer class that we will be take him out of the that class.
So of course we have to have another meeting.
But back to Friday. We sat and talked with son and gave him the option of him leaving school for the day (which the principal and I decided was probably best), go with me to the dr.'s office to pick up some things, or stay at school. He chose to go with me.
While we were at the dr.'s office son wanted to go down to the concourse to find a vending machine. No way. I could just see call the security office sending people out looking for a boy and his dog that were lost in the huge hospital complex.
He wasn't happy with that - but once we got in the car the Spirit whispered - ask him if he wants to go eat at On the Border Mexican restaurant. Boy did his face light up.
We had a relaxed time eating chips and dip and beans and rice.
We are not leaving him alone at all this weekend. We'll have limitations but we want him to have a nice relaxed weekend.
In fact he is still asleep. So far he has been asleep for 11 hours. I'd love for him to be able to sleep a couple of more hours.
From my world to your world.........
Mary
Wednesday, September 21, 2011
I can't believe I did this!
How many times have I gotten onto my blog and updated added something or just read my blog.
What did I notice today? That I spelled Autism wrong!?! How in the world could I have done that?
so instead of autismworl my blog is Austismworld.blogspot.com.
Does anyone in the world know and can tell me how to correct the spelling on my blog name?
From my world, my very world mispelling world.... to your world....
Mary
What did I notice today? That I spelled Autism wrong!?! How in the world could I have done that?
so instead of autismworl my blog is Austismworld.blogspot.com.
Does anyone in the world know and can tell me how to correct the spelling on my blog name?
From my world, my very world mispelling world.... to your world....
Mary
Wednesday, September 14, 2011
This week's update
It has not been a good week. Monday seemed fine until it was time to go horseback riding. He didn't want to go. When we got there he was rude and mean and only rode the beloved horse one time. Then on the way home he proceeded to tell me what a bad mother I was and that I didn't care that he had been burned by another kid with a cigerette lighter and that he needed to stay home just one day.
Of course when I got home I emailed the principal and when read my email he was able to put everything together. He had heard about someone with a lighter that burned another kid.
Then today he called several times - I wasn't home - and when I got the messages he told me that his dog was acting up and that she needed to come home and if she couldn't stay at school neither could he.
So I drove up to school and spoke with the principal, that is after I spoke with the therapist and the rehab therapist, and we felt he was making the dog act up. He was given the choice of staying at school with the dog or staying at school without the dog.
He stayed.
I'm tired - but all is well that ends well.
From my world to your world........
Mary
Of course when I got home I emailed the principal and when read my email he was able to put everything together. He had heard about someone with a lighter that burned another kid.
Then today he called several times - I wasn't home - and when I got the messages he told me that his dog was acting up and that she needed to come home and if she couldn't stay at school neither could he.
So I drove up to school and spoke with the principal, that is after I spoke with the therapist and the rehab therapist, and we felt he was making the dog act up. He was given the choice of staying at school with the dog or staying at school without the dog.
He stayed.
I'm tired - but all is well that ends well.
From my world to your world........
Mary
Thursday, September 1, 2011
Another update
I am always afraid to say that things seem to be going good because I am afraid I will jinx it.
But things do seem to be going pretty good. No fight yesterday or today about going to school.
I am a little overwhelmed myself though.
I have been picking his dog up from school at different times each day and I am always worried that I am going to forget or get something wrong.
His rehab therapist was there yesterday observing him. He must not have realized it since it didn't say anything after school and that is a good thing.
The want him to have 2 appointmnets a week now - and both will be after school. One appointment will be with the rehab therapist and the other will be with the therapist. While he is with the rehab they want me to meet with another therapist for ideas to use at home.
If we make the appointments at 4:15 and end at 5 that should be okay.
Today will be the first day that he has her during lunch. He doesn't eat in the cafeteria rather he goes to another special ed classroom and eats with them. So today he is to go there, give the dog some water, take her out, got back and eat and then go on to class and then I will pick her up. Then about 2 hours later I will take her back and he'll finish the last hour with her.
From my world to your world.....
Mary
But things do seem to be going pretty good. No fight yesterday or today about going to school.
I am a little overwhelmed myself though.
I have been picking his dog up from school at different times each day and I am always worried that I am going to forget or get something wrong.
His rehab therapist was there yesterday observing him. He must not have realized it since it didn't say anything after school and that is a good thing.
The want him to have 2 appointmnets a week now - and both will be after school. One appointment will be with the rehab therapist and the other will be with the therapist. While he is with the rehab they want me to meet with another therapist for ideas to use at home.
If we make the appointments at 4:15 and end at 5 that should be okay.
Today will be the first day that he has her during lunch. He doesn't eat in the cafeteria rather he goes to another special ed classroom and eats with them. So today he is to go there, give the dog some water, take her out, got back and eat and then go on to class and then I will pick her up. Then about 2 hours later I will take her back and he'll finish the last hour with her.
From my world to your world.....
Mary
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