Sunday, December 11, 2011

Long overdue update

Sorry it has taken me so long to update you and how things are going and how my son is doing.

The outpatient hospital is wonderful.  The teachers are great the therapist are great.  He is learning that he has to be around people and participate.

Is he ready to go back to HS.  No I don't think she.  He is a master at munipulating and he has got to stop it or everyone learn how to turn him another way.

For myself - I am tired.  My day is broken up into hours.  It takes 2 hours to take him to school and pick him up.  I take aerobics for times a week for my fibromyalgia.  I have finally decided I'm just going to have to stink the rest of the day because if I take a shower when I get home I only have about an hour to complete something.

I hate the fact though that during Christmas break he will be on shortened hours - no time off.  He'll have to be there at ten but I'll have to have him there by 9:15 so I can make my aerobics class.  I hope they can do that.  If I miss too many days it makes walking extremely difficult.

I would like to ask that you keep him in your prayers.  So much better to learn these things in a safe place then out in the hard gruel world.

from my world to your world......

Monday, October 10, 2011

Not a good week

This has not been a good week whatsoever.  He will be going into an outpatient hospital this week.

He is scared and I am scared.

I told him he would have to be like the people of the City of Enoch - be so righteous that everyone will leave him alone.

I will post more when I know more.

From my world to your world......

Wednesday, October 5, 2011

Will I survive this?

The principal called me this morning and said apparently there was more happened yesterday that he just found out about some of it last night and some this morning.

He said that son actually opened the knife in school.  I am to keep him home until he finds out what exactly went on.

Actually, I am in tears.  Why why why?  I may be asking myself that a question for the rest of my life.

From my world to your world.......

Sara

Tuesday, October 4, 2011

You really thought that.....

I guess he really thought that if he took a knife to school that they would suspend him and send him home.

Not!

These principals are great.  They knew that he brought a knife to school in order to go home.  Nope, we made him stay in school.

And if he doens't shape up he will be going to school on Saturdays!

From my world to your world....

Sara

To Avoid Confusion

My name on this blog is Mary - I am changing it to match up with my crafting blog Two Mules for Sister Sara.  Yes, Sara is name and if you are following both of my blogs you won't be confused.

From my world to your world...... (hopefully I have not confused both worlds!)

Sara

Monday, October 3, 2011

I only thought

It was going to be a good day.  Things went fine this morning and during the woodworkign class.  But then when I picked him up he was fourious.

He threw my door open and put the dog in and then said he was going back into school.

I parked and went in - it was not a pretty site.  He was mad becuase no one said:  Yes, stay home from school tomorrow becuase it is your birthday.

Oh he was cussing and kicking the chair in my car.  So I decided to drive straight to his therapist appointment.  Didn't want to get hom and fight to get him back into the car.

We waited about an hour.

First thing discussed was that I was unders to much stress that I needed my own therapist to help me sort things through and to figure out how I can get help with someone watching his service dog while in woodworking.

To make this long story short - he was not a happy camper when we told him he was going to school.

All the way home:  how I hated him, how he was going to run away, I didn't love him I only got him the dog so he would be quiet.

I called husband and told him I was going to need help and that son was going to school tomorrow.  Husband called back and said he didn't see anything wrong with son staying home.  I explained that we could not give in now.

Later this evening husband said:  Son you are going to have to pick another day to stay home.

But then husband told me that son was having some problems with a kid saying some very disgusting things.  Husband had better call the principal in the morning!

All is calm not but I am tired!

From my world to your world......

Mary

Sunday, October 2, 2011

Latest Doctor Appointment

Of course he didn't want to go to the the psychiatrist appointment - what's new right?

She always calls me in first.  I told her she needed to look at his hands and arms.  She was going to see a lot of scabs from his anxiety.

And I informed her about the tremors that I was seeing but didn't know if they were happening at school.  I can't seem to get the teachers to let me know if they are seeing any tremors.  Maybe they aren't so they don't feel like they need to tell me anything.

She was in somewhat of a quandry.  Change the anxiety medication or try and change the medication that might be causing tremors.  We went with the change of the anxiety medication.

We were supposed to have a meeting this Tuesday for a change of placement.  The principal is thinking of giving him Friday afternoons off from school - which I was the one who originally suggested that.  But then son's therapist said she just was not the therapist for our son but she was a family therapist and she does not want to let son have Friday afternoons off because she wants me to have some time for me.

I am really torn here.  I'm the mom I should be doing what is necessary for my son's success.

On the other hand I have an autism conference I really want to attend - if son is not in school I can't attend the conference.

I have been invited to be a break out speaker at a special education conference.  If son is at home then I won't be able to accept that invitation.

So I don't know what we are going to do.  The school wanted all dr. appointments after school or before school.  To be honest that is killing me.  When school is over son is ready to go home so it is not always plesant to take him to an appointment.

The therapist would like for son to have mini breaks during the school week - the therapist appointment and the rehab therapist appoiontment - on different days of the week each week if he is working hard in class.

Now again on the other side the principal wondered if that would really work because son needs consistency.

We had the meeting set for Tuesday at 11:15 but the principal is going to be out of the building so I'm not sure what day the meeting will be.

They should be contacting me tomorrow.  I really hate these decisions!

From my world to your world.....

Mary