IEP's not my favorite time of the year but very necessary.
I feel like I'm getting ready for a battle.
On my side I have:
Parent advocate
Transition specialist
Department of Rehabilitation
Therapist
and
Me
On their side:
She hasn't told me yet. I'm going to ask again.
I've started a list of things that I want on the IEP:
Allowed to use laptop
Allowed to use programs downloaded on laptop
Abscences not counted against him - documented by letter from doctor
Service Dog allowed in te school
I know I have more things that I want to add so I am going to keep building my list.
From my world to your would.....
Mary
Friday, April 29, 2011
Tuesday, April 26, 2011
Bullying
Is raising its ungly head again. There is another boy who is calling my son a stalker. When I picked up son yesterday the principal said he would talk to the two boys together.
I don't think thtat is the way to take care of it - you don't put the bullied in the same room with the bully and tell the bully to stop.
So guess what? Son would not go to school today. I'm not sure what to do at this point.
From my world to your world.......
Mary
I don't think thtat is the way to take care of it - you don't put the bullied in the same room with the bully and tell the bully to stop.
So guess what? Son would not go to school today. I'm not sure what to do at this point.
From my world to your world.......
Mary
Friday, April 22, 2011
Oh!!!!
Oh I am upset with myself and with him. He did not go to school today. He said ther is a rumor and he said he had finished his work at school.
I still have not confirmed the rumor but I have confirmed he didn't finish his work.
I'm just really upset with him and me.
I still have not confirmed the rumor but I have confirmed he didn't finish his work.
I'm just really upset with him and me.
Wednesday, April 20, 2011
Namenda
Okay, so you're wondering if I finally lost my mind and can't even talk any more. Let me assure you this is not the case.
I heard on the news a month or 2 ago that there was a drug that helped Autistic people form their thoughts so they could express themselves.
At his dr. appointment last week I asked my son's dr. if she had heard of this. Yes she had. It is a drug for alheizmer patients and happend to have a good side affect
I asked about trying and she agreed since there were no bad side affects. Oh my. How thankful I am to a loving Heavenly Father. I feel like I have my little boy back.
He has been talking to people - yes, people he already knows, but all the same he has been talking and has been able to express himself better than ever before.
We have not had any major breakdowns or meltdowns.
He is on 5 mg/day but starting tomorrow will go up to 10 mg/day and we'll stop there and see how things go.
I don't know if this medications will work the same on all autistic people but it is worth a try. Please pass the information on to others.
From my world to your world....
Mary
I heard on the news a month or 2 ago that there was a drug that helped Autistic people form their thoughts so they could express themselves.
At his dr. appointment last week I asked my son's dr. if she had heard of this. Yes she had. It is a drug for alheizmer patients and happend to have a good side affect
I asked about trying and she agreed since there were no bad side affects. Oh my. How thankful I am to a loving Heavenly Father. I feel like I have my little boy back.
He has been talking to people - yes, people he already knows, but all the same he has been talking and has been able to express himself better than ever before.
We have not had any major breakdowns or meltdowns.
He is on 5 mg/day but starting tomorrow will go up to 10 mg/day and we'll stop there and see how things go.
I don't know if this medications will work the same on all autistic people but it is worth a try. Please pass the information on to others.
From my world to your world....
Mary
Tuesday, April 12, 2011
A shirt!
Amazing how a shirt can cause such havoc in the morning.
We were in the living room at 7:45. 30 minutes before we were to leave for school and what does my son do?
He takes his shirt off and tells me it needs to be washed for school.
Okay - so I am telling myself not to overreact. I take the shirt and run to the washer, throw it in, put the washer on warm warm and start it. There is a reason I used warm warm - that is because the filture must be plugged up on the cold and it takes forever for the water to fill to the correct level.
I go back and tell son that he is going to school and he says: "I know." Once done I through it in the dryer with a dry towel. After 10 minutes I throw in another dry towel and call the school and tell them he is going to be a little late. I also emailed his teacher the same.
The second dry towel did the trick. I grapped the shirt and tossed it to him. Of course he had to check to make sure it was totally dry, and then he put it on. I wanted to say Ha Ha I know it has to be dry everywhere.
And then after prayer we were off to school.
I'll gladly let him stay home on Mondays if it means that signing a contract will get him to school the rest of the week without a fuss.
From my world to your world.....
Mary
We were in the living room at 7:45. 30 minutes before we were to leave for school and what does my son do?
He takes his shirt off and tells me it needs to be washed for school.
Okay - so I am telling myself not to overreact. I take the shirt and run to the washer, throw it in, put the washer on warm warm and start it. There is a reason I used warm warm - that is because the filture must be plugged up on the cold and it takes forever for the water to fill to the correct level.
I go back and tell son that he is going to school and he says: "I know." Once done I through it in the dryer with a dry towel. After 10 minutes I throw in another dry towel and call the school and tell them he is going to be a little late. I also emailed his teacher the same.
The second dry towel did the trick. I grapped the shirt and tossed it to him. Of course he had to check to make sure it was totally dry, and then he put it on. I wanted to say Ha Ha I know it has to be dry everywhere.
And then after prayer we were off to school.
I'll gladly let him stay home on Mondays if it means that signing a contract will get him to school the rest of the week without a fuss.
From my world to your world.....
Mary
Monday, April 11, 2011
Really!
It was a bad night. I was really tired lasat night so I asked my husband to please give son his pills. He said okay.
That didn't make a bad night what made the night not so fun was that son was up all night! I kept asking dear husbnad: "Are you sure you gave him his pills?" "Did you watch him take his pills?" "Did you look under his tongue?"
Oh man I felt like I wasn't going to make it. I kept telling him to please just go to bed and son kept saying he couldn't go to sleep.
You may wonder what he did all night - well let me tell you some of the things that he did: looked for food, in and out of his room, cooked and ate a pound of bacon.
I did not send him to school. I knew his morning meds would keep him going through the day but I knew what would happend after school - he would be so tired and totally grumpy and then there were problems going to his horse back riding lessons. So I was selfish - what would be easier and better for me and for him - let him sleep.
I woke him up for his homestudy seminary study and then I let him go back to bed - but before he went back to sleep I had him sign a contract. Yes, a contract. It said:
I will go to school the rest of the week and go back to school after my doctor appointment on Wednesday. I will also go whever my mom want me to go.
_______________
Signed
He did go with me too. We went to Hobby Lobby so I was able to use two 40% off coupons on some batting for quilting and a page protector for a couple of love notes that my great aunt and great uncle had given each other and they are 100 years old.
I'm guilty - if he is going to stay home then I'm going to all the mileage out of the situation that I can.
In case you are wondering he did sleep until 9:00 a.m.
And if you are courious why he didn't go to sleep last night, let me tell you.
I asked husband tonight if he say son swallow the pills? He said yes, he saw them put them in his mouth.
Did you look under his tongue? No he didn't. While we were talking I told son that he was going to go to bed early because I had already taken my sleeping pill and so I would be giving him his pill tonight and therefore go to bed early.
Son said he wanted dad to give him his pills. I don't think so. Then son said: Well, maybe one of the pills slipped back into the cup so he may not have taken it.
Case closed!
I gave him his pills at 9:15 and at 9:34 sound asleep. Yeah!
From my world to your world....
Mary
That didn't make a bad night what made the night not so fun was that son was up all night! I kept asking dear husbnad: "Are you sure you gave him his pills?" "Did you watch him take his pills?" "Did you look under his tongue?"
Oh man I felt like I wasn't going to make it. I kept telling him to please just go to bed and son kept saying he couldn't go to sleep.
You may wonder what he did all night - well let me tell you some of the things that he did: looked for food, in and out of his room, cooked and ate a pound of bacon.
I did not send him to school. I knew his morning meds would keep him going through the day but I knew what would happend after school - he would be so tired and totally grumpy and then there were problems going to his horse back riding lessons. So I was selfish - what would be easier and better for me and for him - let him sleep.
I woke him up for his homestudy seminary study and then I let him go back to bed - but before he went back to sleep I had him sign a contract. Yes, a contract. It said:
I will go to school the rest of the week and go back to school after my doctor appointment on Wednesday. I will also go whever my mom want me to go.
_______________
Signed
He did go with me too. We went to Hobby Lobby so I was able to use two 40% off coupons on some batting for quilting and a page protector for a couple of love notes that my great aunt and great uncle had given each other and they are 100 years old.
I'm guilty - if he is going to stay home then I'm going to all the mileage out of the situation that I can.
In case you are wondering he did sleep until 9:00 a.m.
And if you are courious why he didn't go to sleep last night, let me tell you.
I asked husband tonight if he say son swallow the pills? He said yes, he saw them put them in his mouth.
Did you look under his tongue? No he didn't. While we were talking I told son that he was going to go to bed early because I had already taken my sleeping pill and so I would be giving him his pill tonight and therefore go to bed early.
Son said he wanted dad to give him his pills. I don't think so. Then son said: Well, maybe one of the pills slipped back into the cup so he may not have taken it.
Case closed!
I gave him his pills at 9:15 and at 9:34 sound asleep. Yeah!
From my world to your world....
Mary
Wednesday, April 6, 2011
Off topic personal request
I know the power of prayer and I ask for your prayers and thought this day for a very dear friend. Her son is in the ICU and they do not know if he is going to make it. I would really appreciate your prayers in his behalf.
As much as we struggle as parents with special needs children I cannot imagine what my friend is going through.
From my world to your world......
Mary
As much as we struggle as parents with special needs children I cannot imagine what my friend is going through.
From my world to your world......
Mary
Good Websites
Here are some good websites that I was given from an online crafting friend.
You do have to have a computer for your child and for me that is an uphill battle, but, I did have a thought this morning.
What if I created a nonprofit organization for donated computers and money to buy computers and then I could give them out to kids with special needs, for those that really could use a computer in school but just cant't seem to get the school to give them one.
I do plan on asking my sister how I should/would go about this. But until then these might be of interest/benefit to you and your children.
Grammar, English Grammar | Ginger Software
Student Planner - The StudyMinder Homework System School Planner
Inspiration - Comprehend. Create. Communicate. Achieve More. | inspiration.com
From my world to your world.....
Mary
You do have to have a computer for your child and for me that is an uphill battle, but, I did have a thought this morning.
What if I created a nonprofit organization for donated computers and money to buy computers and then I could give them out to kids with special needs, for those that really could use a computer in school but just cant't seem to get the school to give them one.
I do plan on asking my sister how I should/would go about this. But until then these might be of interest/benefit to you and your children.
Grammar, English Grammar | Ginger Software
Student Planner - The StudyMinder Homework System School Planner
Inspiration - Comprehend. Create. Communicate. Achieve More. | inspiration.com
From my world to your world.....
Mary
Eating and eating
I think he is going through a grouth spurt and he is expanding his food choices.
Monday he wanted me to buy frozen corn dogs. He ate one of those, but at least he tried them.
Yesterday, he wanted me to pick him up early from school and take him to Wal-mart to buy steak fingers and gravy.
I didn't pick him up for that but I did go to Wal-mart before I did pick him up. And talk about frantic - that was me at Wal-mart looking for steak fingers. Up and down the isles I went - back and forth. I finally found someone to hlep me and all that we found were chicken fried steak - not fingers.
So I bought it hoping for the best. When I picked him up I told him he had better not get upset about the food.
He looked at it and wasn't happy, but when he got hungry he asked for one. So I heated the steak in the microwave and made the gravy. Ready! Wrong. He asked where the mashed potatoes were. Ooops.
So I quickly made mashed potatoes - of course they were instant. He ate it all. Yeah! Success!
Later that night after I gave him his evening pilss he asked for another one. He not only ate one but two! The works - chicken fried steak, mashed potatoes, and gravy!
Now am I going to be able to keep him full? That will be the next question.
From my world to your world...
Mary
Monday he wanted me to buy frozen corn dogs. He ate one of those, but at least he tried them.
Yesterday, he wanted me to pick him up early from school and take him to Wal-mart to buy steak fingers and gravy.
I didn't pick him up for that but I did go to Wal-mart before I did pick him up. And talk about frantic - that was me at Wal-mart looking for steak fingers. Up and down the isles I went - back and forth. I finally found someone to hlep me and all that we found were chicken fried steak - not fingers.
So I bought it hoping for the best. When I picked him up I told him he had better not get upset about the food.
He looked at it and wasn't happy, but when he got hungry he asked for one. So I heated the steak in the microwave and made the gravy. Ready! Wrong. He asked where the mashed potatoes were. Ooops.
So I quickly made mashed potatoes - of course they were instant. He ate it all. Yeah! Success!
Later that night after I gave him his evening pilss he asked for another one. He not only ate one but two! The works - chicken fried steak, mashed potatoes, and gravy!
Now am I going to be able to keep him full? That will be the next question.
From my world to your world...
Mary
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